Friday, July 1, 2011
What a last couple of days
Sorry havent posted lately. I have been really busy and not feeling to well. Destany had a descent day Wednesday, her dad said that she seemed high off the diastat that morning but by the afternoon she had perked up. Thursday was a different story. She ended up seizing again and had to have 2 diastats again this time her seizure lasted 18 mins. I just cannot imagine what her body goes through when she seizes that long. She ended going to the doctor today cause things just arent right. The doctor told us we were out of options, well there is 1 option and it is another medicine. I dont remember the name right now but it is one we have to get from Canada. But she said there is no other thing to do all her levels were good so she just dont have any other answers. I just dont understand why God wants to put this innocent child through all this, sometimes i wish i could take all her pain so she can lead a normal life. But i know i cant and i also know that he does everything for a reason. I am closing this tonight and asking everyone to pray for my little girl because she really needs them right now.
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Hey there,
ReplyDeleteI am so sorry your sweet girl is having tough days, I know exactly how you feel, and it is heartbreaking, but you are right, God is caring for her..and think about how much she teaches those around her. We were on Clobazam for a good while with our sweet Caleb, and I know it kept the "fire out" but overall his seizures didn't change much. I will be praying hard that it will be just the answer for your sweet girl, maybe it will enable her to have some really good days with you. I don't know if you have applied for make a wish in the past, but you should if you haven't. And just know many are praying for her to have some good days with you still. As a mama, I can tell you that making the most and doing anything you wish you could is so important, take the time and go....
Much love,
Beth Baker
Donna please know that we are standing with you in deep prayer for Our Lil Angel Destany. We are also holding all of you up for strength and guidance. We have watched you grow into a strong young woman and we love you so much. We know this is hard we went thru it with Amber 13 years and know now she is singing in Gods choir. Destany loves Jesus and he is there with her at all time. He will bring you ,yours and Destany thru this its his will. We love you all, give that lil angel and big hug and squeeze from Grandpa and Grandma in Joplin,Mo Love Grandma Barb
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