Great 2 weeks with Destany

I went and picked Destany up on the 17th and had her through today. She really has had a great week and a half until today but i will get to that story here in a minute. Last night Lee cooked some fish and i gave Destany a piece of it and she took it and would put it up to my mouth and tease me by taking it back, she was laughing so hard from this. Finally in the end i ended up eating the fish. Well today i figured we would try with cheese puffs. She would let me take a bite then she would take a bite and just laugh about it. Well we done this through a few of the chips and went into a seizure. It was one of her stare off seizures and so it lasted forever it was where she had to have altogether 30mg of diastat. But at least we arent in the hospital and we got it under control. She has really done good with her seizures since she has been here. I am thankful for the 10 days i got to spend with her and enjoyed all of the time with her. God has been so good to us for these past 10 days and i am glad i got the time i did with Destany, She is back home with her dad now and resting comfortably.

I went and visited Destany and she was real quiet. The nurse said she had a good past 2 days laughing and playing in morning and in the afternoons she would sleep a couple of hours. On Wednesday she had to have to diastats because an increase in seizures. But all in all she is holding her own right now.
As I sit here I think about little Lucy and the battle her mom and dad are going through. I dont know exactly how they feel but i do know somehow how they feel. I just pray for Lucy not to have to go through suffering and pain. I also pray that Erik and Kate find peace within themselves when the time comes to have to let go. I met Lucy on Destanys hospital stay and she was just the sweetest little girl full of spirit. I sit and talked to Kate for a few minutes and they are really a strong couple and they have a lot of faith in God. Please say a prayer for this family tonight as we never know what the future holds for these special children god has given us.

Destany is coming home from Hospital

Just wanted to let everyone know that they got Destany's level up on her dilantin and she is at 12.6. She has done really good the last couple of days so they are letting her come home this afternoon. YEAHHHH!! Thank you for following Destany's blog and I will continue to keep everyone updated.

Destany is back in hospital

Yesterday got the text and call that they had to call 911 on Destany because she started seizing at 1:05 and continued for a while they gave her 2 20mg diastats so protocol is call 911. We get to Lebohneur to find out her dilantin is at 5.3 which is way to low for her. So they gave her a bolus of dilantin and admitted her. This morning she had 2 tonic clonic seizures lasting a minute a piece back to back. Her dilantin level is still at only a 9 and they want it between 12 and 16. So she is spending another night so they can try and get it raised back up. She sounded really congested today like gargle and moaning alot like she is hurting. Please pray for our sweet little angel.

Destany is home

Destany came home today after having a good day and night. It took us forever to be released because of the medicines that she is now on and getting them all filled there and at WalMart. But the good thing she is HOME!!!  Thank all of you for all you prayers, phone calls and text messages. We love each and everyone of you and would like to say a special thank you to the staff and doctors who took such good care of our little girl. But most of all I want to thank God for him letting us bring our little girl home.

Hope

Well Destany didn't get to go home yesterday cause she had a rough night on Tuesday night. She started seizing around 9:45 and didn't still till around 1:30. The seizures were on and off but they gave her 40 mg of diastat to try and stop them but it didn't work. Finally they eased up and she slept till 5 when they started up again. They continued until 1:45 on and off. But from then on we have not had any major seizures since then. So today they put her on the g-tube depakote since she is not going to go home with an IV in her. So far so good so hopefully we have all this under control and we will be going home finally tomorrow. Thank goodness cause she will be more comfortable in her own bed.

Finger crossed

Well Destany has had a couple of good days. This morning she had 2 tonic clonic seizures and her blood pressure dropped but other than that everything else is stable. This means if she has a good night and morning we will be going home tomorrow. I am so excited. They decided that they would wean her off her meds at home slowly instead all at once. They have changed up so much of her meds that all she really does right now is sleep. She might be awake for a little while but then it is back to sleep she goes. The doctors are fine with this cause it is letting her brain rest. Thank you for all the prayers, phone calls and text messages we have received while Destany has been in the hospital. God had his hands on her once again and thank you for letting me keep my little girl for a little while longer.