Lee and I went to see Destany today. She just smiled at Lee and was so happy to see him. She got so excited that she had a couple of seizures while we were there. I really enjoyed the smiles she gave since we don't get to see them to often. Overall the visit with Destany was a good one.

Destanys day

I saw Destany this evening and she was doing ok. She had 2 seizures today 1 this morning and 1 while getting a bath. while i was there she did some jerking. But she was watching Karate Kid and laughing at Ralph Machio earlier according to the nurse. I started messing with her bu tickling her and playing with her bear with her and got a great smile out of her.It made my day. I love and cherish each smile I get from her. The nurse thinks that the knot behind her ear is a swollen lymph node. David is calling the doctor tomorrow to see what they want to do.

Good visit

I went out and visited Destany today and gave her Valentine that I bought here. I had to put her hand in the bag to get her puppy out because she was not interested at doing anything.she finally got it out and held on to it. She was really sleepy because she had just got her meds. She was awake when I left but all she would do is just look at me. I tried to tickle her and poke her all she would do is look at me. I was talking to her nurse today and she found a knot behind her ear today. This has me worried because my middle son had a knot behind his ear and it turned out to be lymphoma. So this worries me to death because i worry so much. Maybe it is just a swollen lympnode. I hope and pray that is all it is. We are calling the doctor first thing in the morning to find out what she thinks and wants to do.I will keep everyone posted on this and will let you know as soon as we know anything.

Destany

I got a text at 7:40 this morning saying Destany had to have diastat this morning due to her being in a start off seizure. I really hate that she had to have this cause she just had some on the 29th of january. I went to see her today and she slept most of the time. Ms lynn did say she put spongebob on and she perked up for a minute. She really does not do this much anymore. She really doesnt even smile anymore which breaks my heart cause anyone that knows Destany knows how she use to love to laugh and smile. She at one time had the pee wee herman laugh and it would just make you laugh till you all but cry. I love this little girl and I really hate the days when I go and she just lays there all i want to do is cry. Please continue to pray for her and everyone around her cause we suffer as much as she does.

missing destany

I am missing my little girl tonight. She has had a pretty.good week with only one diastat. I think we can handle this. She has luckily not been really sick since the flu. I hope that it stays this way. She has her days where she sleeps a lot. But that is to be expected. I love u sextant and will see u in a few days.